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4. We want to be part of our own care

We want to be part of the solution for ourselves as well as for others. We want to have an input into our own care. We want accurate information about our condition and proposed treatment and access to someone who has an overview of our care.

Outcome
5. All users feel that they are contributing to their own care.
How it should be monitored

Provider organisations should have in place systems, policies and training to support this way of working. For instance, the assumption should be that most people will have control of their medication, the right to accurate information about their condition and proposed treatment, including the suitability of alternatives, likely side effects of treatment, and their impact. Users need to have access to a range of forms of independent advocacy, and the range, numbers and types should be monitored.